Sunday, December 9, 2012

Sleep study update & someone turned 6 months!


What can I say? We were in the hospital 5x the whole week for tests and check up so it did get busy. 

It was probably the feeling of having to stay overnight at the hospital again last Sunday that made me feel very nervous. It felt like a re-run of the times when Isabella was in the hospital & it just brings back a lot of horrible and sad moments.  

I guess another thing was, I was worried about Rick may forget something or may have a hard time preparing the kids for school the next day. He's always handled the kids by himself well and although I hate to admit it, there were many occasions that he did a better job than me. :) I have to learn to trust him more. :)

Anyways, we had to do the sleep study to see if she is blocking her airway when she sleeps. Children with Down Syndrome tend to have a longer tongue so when they sleep and the tongue relaxes, it tends to fall backwards which leads to blocking the air passage that causes sleep apnea. It could cause irregular heartbeat and heart failure (which she already have) and eventually, it is no good for her.

If she does block her airway, she would have to be on a CPAP daily at night (something I was hoping she wouldn't have to go through). 

She was hooked up immediately the moment we got there & had to turn off the lights (no TV, no phone) so I wasn't able to take a clear photo. 

This photo below was taken in the morning when she was being unhooked. If you look closely on the right side, you'd see how many cords were connected to her head, there were a total of 32! The tech also had to put some paste on her head/hair so the cable would stick to her head. It was removable by water but it took a while. 


Isabella on CPAP. The CPAP and cords connected to her head does not hurt her. 

This was the only photo I was able to take with my camera (also taken in the morning). This was a close up of her in a CPAP.


We were done by 6:30am and had to leave the sleep study area. However, she was scheduled for a 10:30am RSV shot and since Rick had the car, we had to wait in the hospital. Fortunately, I told them we were there since night before so they accommodated us an hour earlier than her appointment.

So what is RSV?

RSV (Respiratory Syncytial Virus) is the most common germ that is highly contagious and can be spread through droplets containing the virus and causes lung and airway infections in infants and young children and the infection begins in the fall and run into the spring.

How can RSV spread?

It is airborne. Being near by someone who sneezes, coughs or blows their nose, kissing, shaking hands;
Touching nose, eyes, mouth after you have touched something contaminated by the virus such as toy, doorknob etc.

Do you know that RSV Virus can live up to 30 mins to 1 hour or more on hands and up to 5 hours on counter tops and several hours on used tissues? 

To many healthy person or adults, symptoms can be like a normal cold/flu and it goes away. but if it gets to Isabella, it is very serious. We have been warned by doctors and nurses that we can't take it lightly and make sure that she is not around people who are showing signs of cold symptoms, sick and even getting over a cold. I was also told recently that there are already 4 severe cases here in Calgary and those children are at the ICU at Children's Hospital (oh, my heart goes out to them).

Isabella will need 5 shots per season and so far, she's only had 1 so we are scheduled for many more shots. What she is getting is not a vaccination. It is a prescription medication (only offered by the government to children who are premature, with heart disease and babies who have poor immune system because it is a very expensive prescription - although  personally, I think it should be offered to all babies who are 2 and under, regardless).

The stress comes in with the boys - nagging them from the moment they get in the house to wash their hands,  change their clothes and so on and so forth. I have to admit, home schooling up to 2 years came to mind (although I know it's quite extreme decision to do).  It ain't easy but we have to do whatever precautions we can to avoid Isabella getting sick. I may have to be a bit stricter with play dates, even car rides and we are already avoiding crowded places such as the mall. We can't just take the risk.

We may have been gone overnight but Rick did miss his little girl! I took a few photos of them when we got home. You may still see some of the white paste/glue on her head here.



Yes, she loves sucking on those little fingers!

Yesterday, this little one turned 6 months! As if I'm not busy enough, I made her a tutu skirt! I also ordered the monthly sticker on Etsy.


Looking forward to a great week for us and for you!




3 comments:

  1. She is just so adorable!!! I loveeeeee the photos!! RSV is really bad here in Arizona!! They don't allow children into hospitals from November through February unless they are the patient!!

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  2. Your baby is very lovely! It breaks my heart though seeing her with those cords on her. You are so lucky to have her and she is so blessed to have found parents like you. Stay strong as you always are, and keep the faith up, no matter what. Nothing is impossible in this earth. :-)

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  3. Oh, it breaks my heart to see all the tubes and cords on her. You are such a strong woman and I truly admire you for that! Hugs to you!

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